My Blog

How we met

I know it’s been forever since I’ve posted here, but I love this story.

On this day 32 years ago the hubster and I met on a blind date arranged by mutual friends. We 6 grouped at a table in a bar/restaurant (The Office Lounge) that had live music. He disappeared for 1 1/2 hours to “take care of a household chore he’d left midway thru doing to come out” on the date. Chore: draining a waterbed. I thought he’d merely used an original gonna-ditch-ya line. No one was more surprised than I was when he returned. He feigned insult I thought he’d split, but much later admitted he’d planned the waterbed emptying to have an out if he didn’t like the setup. He dressed down for the date so I had figured he wasn’t interested in dating, anyway. I was wrong. He asked for my phone number.

Two weeks later we went out alone and timing made it St. Patrick’s day. We drank green beer at Lacky’s.We played duck pin bowling and I learned he was as competitive as I was. That evening he interrogated me (he denies this and claims he was only trying to get to know me, but I was there, and he definitely had a check list of questions in his head). I must have passed.

A few months later he proposed. And 6 months and 5 days after we met we got married in my parent’s backyard amongst the flowers.

Happy 32nd dateversary, Dave! I love you more now than then. ♥️

Disparate trauma hold hands

Watching the 3 mile island docuseries on Netflix and remembering the shadow cast by it. The fear you couldn’t control with reason because you’d spent grade school diving under desks in nuclear bomb drills. I was 18 when the 3 mile island “accident” occurred and I went to see the movie “The China Syndrome”. The audience collectively gasped at the line about an area the size of Pennsylvania being uninhabitable if it occurred. The unknowable around the effects of the deliberate slow daily release of radiation to shrink the hydrogen bubble to avoid an explosion and core meltdown. Then it fades into a memory of a near miss except for those close by who were poisoned in high enough doses to see physical manifestations. Three years later when the core was examined we learned we were a mere half hour way from our nuclear nightmare. Then they pretended a cleanup years later.

Forty years later a global pandemic and that old fear you can’t control with reason rises to visit for a much longer stretch of time than 3 mile Island cultivated. Familiar, and no comfort in that familiarity. Gods know I don’t have the level of naiveté I possessed when I was 18. I wonder what terror my remaining years will witness. And still I hope…

Mindfulness is bloody hard

This is one of the most difficult concepts for me to not argue against. What do meeeeaaaannnn I’m not my thoughts and feelings?!? Of course I am! Oh wait, thank gods I’m not. With a brain that runs a hundred directions at once, really, thank gods I am not.

My essence, my love that is life force, the whatsit in us that drives and powers all that is, I know are not my thoughts and feelings. It is so much more and so much less than the story in my head. In those sparse and atm rare moments that I remember this, I find peace within.

A Prayer for Descendants

On another platform we were discussing the dearth of prayers for descendants compared to the wealth of those for ancestors. To combat the lack I wrote one.

A Prayer for Descendants

My name is not a whisper in your ancestors’ ears,
so long gone,
a gossamer memory tattered by millenia.

And yet,
and yet…

When breezes lie soft on cheeks and hair,
and rains gentle across your lands;
when baby rabbits play tag nearby,
and hope lines the pockets in your soul;
when drink on tongue quenches deep thirst,
and laughter percolates crevices in
your home,

know this, dear one,

It was me,
kissing love into the stars,
to sift thru dark skies,
and weave into dreams
to bespatter your days.

~Boneweaver ©️2022

O Nome dos Sete – Sobre quando os Guardiões receberam seus nomes

Foto de Miriam Espacio Em um tempo dentro do tempo, do fogo primordial que queimava no Coração Negro da Deusa Estrela, ela foi chamada sete vezes e contemplou sete mistérios. Sete dias, sete planetas, sete estrelas pulsantes, sete estradas, sete chaves. O primeiro que ela encarou foi aquele que contava histórias. Ela se deitou em […]

O Nome dos Sete – Sobre quando os Guardiões receberam seus nomes

Grief is Chaos

Grief is a slippery, dancing, horrible, unavoidable thing. We have so many ways to talk about it, even us deathworkers. We talk about moving with and through it. We say blessings to others of peace and strength. Sometimes we discuss “getting to the other side” of it. Grief isn’t a wall you scale (though it can feel that way). There isn’t a line you finally step over where all of present life returns to the sharp focus of before the grief. Your first grief (though you were too young to know its name) is like your first time having sex, the you afterward can never be the you that was prior to the experience. There is no returning to them. 

When the world shatters you into grief, it is chaos. Loving someone, some thing, any thing means you’ve struck a bargain with grief. When it stomps through the door, it shoves you down, hard. You struggle for air, the rooms are topsy turvy. Everything tilts, shimmers like mirages, and nothing fits – furniture is uncomfortable, clothes rub the wrong way, sounds are deafening or whispers. You are upside down, floating in a debris field you cannot dodge. 

As time moves around you there is less debris, but you see it in the edges of your vision. Chaos lessens, but doesn’t become order. Eventually it settles into a still pool deep within you. As long as nothing ripples the surface, you do feel some peace and can plot your way through this new normalcy.

One pebble. That’s it. One tiny pebble and your still pool splashes that grief back up through your soul, scorching, shoving you down, teeth bared, gleefully taking its next chunk. 

What time does is make the splashes smaller, mostly. Until the pebble is a rock. Then, chaos. Grief doesn’t give way to order. Grief gives way to knowledge. Grief imparts wisdom from that still pool that stays behind. Grief schools us on surviving loss, on the price of love, and on our blessed mortality.

I’m not quite cruel enough to say, “embrace the chaos”. You can’t fully prepare for it. Everyone gets the chaos, there is no secret back path around it. You can expect it. However, walking around every day expecting grief is no way to live. Best when chaos hits to simply remember it. Remember, because you’ve encountered grief since you were born. Remember eventually it settles into a still pool. When it does, embrace the life you’re living as well as you’re able to in that moment until it’s disturbed, again. 

As a Deathworker and intimate partner with Chaos, perhaps you were hoping I’d have better advice, a faster fix. This is the best I’ve got because I too signed those contracts with the blood of incarnation – to love means to grieve later, to take a first breath means to exhale a last one. May we all love and live fully making those contracts worth our blood. Hail! 

“Because I’m sure most patients prepare their past history as if they’re doing a TEDtalk.”

Sometimes I am so obtuse about my own self. Sure, everyone is, but I’ve done bunches of work on myself (whatever the hell that means) and believe I’m fairly clued in about myself. And I am, except when I’m not. There seems to be a neverending supply of blind spots.

Recently I went to a follow up appointment with my new primary doctor. Everything went fine, but I noticed something curious about how he treats me and it took me awhile to figure it out because of how foreign it felt. He was kind. And gentle. And oddly hesitant about ordering run-of-the-mill bloodwork.

Back story: my favorite primary doctor retired about a decade ago. She was one of the few medical people that didn’t auto dismiss me. My retired doc listened and the thing that made her different was her willingness to be wrong. She acted on that willingness. When she told me she was retiring I was happy for her and sad for me.

Since her retirement I tried out different various primary docs, a PA, a nurse practioner, and none were willing to be wrong. I’d get shrugged shoulders. If I’d found a way to manage a symptom that was deemed good enough. But it wasn’t. My whole daily life was built around not doing things to exacerbate symptoms. Because of this my life became small and very curated, while I masked as normal because my body was a mystery. I told few ppl about being sick. It wasn’t worth the reactions.

Fast forward to my first appointment with new doc 6 months ago, who I told about previous medical encounters,  the plethora of tests that showed nothing significant, and named my litany of various and seemingly disparate symptoms. I allowed my frustration to show. I talked about what medicines had worked well for more than a year even when I was doing very poorly.

This doctor was my last shot at trying to get help because I was exhausted by the dismissals and what at times felt like derision from the medical community. It takes an awful lot of energy and forced hope to see someone new, retell all the the things. To be ignored, dismissed, or thought to be a malingerer afterward was too disheartening to do any more if this guy blew me off, too.

I left that appointment with a tentative diagnosis and a script for the one thing that had been working and now I’d be able to take daily, consistently. Honestly, I don’t care if the diagnosis stays tentative because I have treatments that work. I have big parts of my life back that I thought I never would. I’ve had to give up some things, but that’s from covid ravaging what was already broken. Can’t have everything in this body, but I’m better with some symptoms than I have been in many years.

So, back to realizing my recent blindspot. When I left my new doc follow up appointment a week ago I said to my husband, in a surprised voice, “he treated me like I had medical trauma.” Husband said, “yeah!” in a tone that implied it was ridiculous. I was about to agree with him when my brain clicked and I thought “oh”. And just like that I knew, as well as I know my name, that the doc was correct in treating me that way.

I was simultaneously gobsmacked and disappointed in myself for not having seen it. I was relaying this new information to a friend of mine in terms of “curve balls and realizations”. When I said something about “everyone else had medical trauma. I had bad luck. Or something. Gawds. lol” they had the absolute nerve to respond, “Because I’m sure most patients prepare their past history as if they’re doing a TEDtalk.”

~zing~

I cracked up, loudly. Then I responded in the only way one does when they’ve spent bunches of time building an intimate friendship: “Fuck off”

Medical trauma. I have it. Maybe, with more time, it won’t have me.

We have a beach house! I named it “All Is Whelk”*!

And we’re renting it out when we’re not there. We’ll be there soon for a couple of months, then back here again, then there, etc. It was always a dream that took most of a lifetime to come true, but YAY!!

It’s on Hatteras Island, NC, one back semi-oceanfront with the sounds and sights of the sea. It’s a relaxed uncrowded atmosphere on Hatteras, and the house is reasonably priced for rentals. Enjoy our house as much as we do, for far fewer dollars!

Book your stay here: https://bookshoredetails.escapia.com/Unit/Details/166423

What a view from one of the couches!

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*Name is because Julian of Norwich and a quote that never fails: “All shall be well, and all shall be well and all manner of thing shall be well.”

Death, Aging, & House, M.D.

Aging is so interesting. I started (re)watching House, M.D. today. I’d forgotten how much I enjoyed the Sherlock of medicine. Pilot episode, and my takeaways from it are wholly different than 15 years ago when I first watched it. Aging changes perspective. And thank gods, right? How utterly dull life would be if it didn’t.

Watching House reminded me of my mum because she loved the show. She died early into season 3 in 2006. I continued to watch thru all 8 seasons, even as it did what long running TV series tend to do, lose its edge. I did it because it made me feel connected to my mum. For years I held a tenuous connection thru a tv show and when it ended there was a finality to my mother’s death that hadn’t been before. Aging is so interesting, yes?

I am 58 years old. I’m far closer to my death than I am to my birth. Like every human each day brings me closer and farther away to those two things. The 2 universals of being human. Forget taxes, they’re hit and miss, but birth and death? Those two are guaranteed.

Aging piles on experiences, adding layers of uniqueness to my perceived self. Closer to death strips that uniqueness away, peeling back my self to the reality that I in fact am not unique. Neither are you. We’re born, we die. All of us. No uniqueness there. Yes, it’s humbling. At times the inevitability of it is somber. More than either of these it allows a freedom that closer to birth doesn’t. Not striving to be ever more unique each year is a relief, a blessing. Aging releases me, us, into just being human in whatever way we define that. The freedom to die like everyone else is oddly comforting. Aging is so very interesting.