Category: Terminalcancer4me

Here is the most recent update for the clinical trial. They’ve decided to close phase two. Phase two is the one where everyone gets the drug and it is the one I wanted to be included in, and because they had spoken to me already about it all I had to do was sign the paperwork so I could be slipped into the study. Earlier today I signed the paperwork.

A couple more things have changed. There will be fewer scans then were originally intended. They don’t need them since they are closing this phase of the study they don’t need to track for the future people in the study. It is a 6-month trial of the radioisotope. The radioisotope will be given once a month along with the new chemotherapy drug.

The chemotherapy drug will be every week, but I was granted 2 weeks off in April and two weeks off in June. We need the two weeks in April in order to pack all of our stuff away for rental season down on Hatteras. The two weeks in June are for family vacation. The side effects are supposed to be worse than the pemetrexed, however, it shouldn’t be worse than when I was on keytruda, carboplatin, and pemetrexed all at the same time. I start the new chemo med in 2 weeks on OlderBoy’s birthday.

In the next two weeks I should be getting an updated PET scan and an additional PET scan that they inject the tracer for so they can get a good look at the aspects of the tumor this med is supposed to recognize to deliver the radiation. The trial medicine is supposed to begin on March 4th. I feel good about doing this trial and I hope for great success!

I had the meeting with the clinical trial doctor yesterday. The study is in phase two non-randomized and that is far better than phase 3 randomized. If I qualify for the study it will last for 6 months. I will receive a radioisotope once a month during this time. I will also receive a different medicine as a chemotherapy infusion on a weekly basis during the 6 months.

If I do not qualify for the study I’m not sure what happens with the chemo, but the clinical trial doctor said that in the not too distant future there would be more trials for my type of lung cancer that I may qualify for.

I need two separate PET scans to determine if I am qualified for the study. The next 6 months looks rough if I qualify and maybe also if I don’t. Please keep the magic and prayers coming. I would like to qualify for the study and I would like for the radioisotope to work wonders on the tumor. Thank you so much! Love all around. 💙