Tag: deathwork

Friends, it has been a week. Sunday I was able to go to a book club and later go to OlderBoy’s for dinner. It was a great day that had me feeling like the person I was pre-chemo. I’m so glad I did Sunday.

Come Monday, new side effects/body trashing from chemo or the prednisone (to fix the chemo assault) were arising and staying. By early Tuesday morning I left a message on the nurse’s voicemail explaining that I believed I had a yeast infection, thrush, in my mouth and throat. A script was called in.

There was a 36-hour delay in getting it because of supply chain issues, yay! Picked it up last evening. Had a few doses and was incredibly nauseated after each one. Called the doc again this morning and left a message about the side effects.

A new Med has been called in. The hubster is picking it up now. Cross your fingers it works for me with no extra side effects! And still I’m so glad I did Sunday. And I’m sad I had to cancel my this Saturday’s plans. But time to kick this thing in the butt and to the curb.

Aaand that’s not all folks!

Decided to spread it out. To be certain this lovely thrush isn’t creeping thru my upper GI tract, partying and trashing the joint, my doc scheduled an endoscopy for next Wednesday. 🔭

Friday is my MRI of my lovely brain. See—> 🧠 how cute!

This week was a week without a trip to Hillman. Excellent.

~love all around~

(eventually I’ll tag these entries)

#deathwork #terminalcancer4me

Current listening. May seem morbid at this point in time yet was a favorite prior to diagnosis.

https://youtu.be/CP5MKd5zStE?si=Gq7TGmVt1saeiOnS

Look at this gorgeous bracelet my niece got me. I love it! Thank you Dana Beech Watkins . 💙❤️💜

I had the endoscopy to check the thrush wasn’t having its way with my GI tract. It wasn’t. Everything looked normal. Yay!

And, the sedation for the endoscopy was significant enough that I regrettably forgot to remove the gauze and tape from the IV site until 8 hours later.

MCAS + *paper* tape = dumbass mast cell overreaction, because why not?

Blue is from the tape. Turquoise is where the needle stick was.

Bodies are stupid. 🙄

So here we are with my latest health update. I had my MRI of the brain this morning. It went w/o a hitch.

Initial results hit a couple of hours ago. It appears to be good news! This along with the shrinking of the primary tumour in my lung means the treatments have been doing what is desired and that is really what I /we wanted. 🙂

MRI result in brief:

Impression
Posttreatment changes as above. The previously described
supratentorial and infratentorial metastases have overall decreased
in size. No evidence of new metastasis.
___________

🖤💀🖤
Deathworker update:
In true deathworker slow-to-do-our-own-stuff fashion I have finally printed off my advance directive. 😃 I’ve chosen my health care agent (and alternate).

I’m already an organ donor so that’s easy. My wishes for continuous coma and/or no hope for survival remain the same… Unhook me and let me go. Yes to hospice when we get there.

Caringinfo.org has advance directives for all 50 states, the District of Columbia, and Puerto Rico. Here is the link for the Pennsylvania one: https://www.caringinfo.org/wp-content/uploads/Pennsylvania.pdf

All other states: https://www.caringinfo.org/planning/advance-directives/creating-advance-directive/

Many useful items on this site. Plan ahead so your needs are known. 🫂 💙

~love all around~

Saw the MRI photos. Big decrease in size of brain mets! Dr. Malhotra was ear to ear grin.

Port Lab woman was flat out mean and scolded me when I told her the port and the bloodwork stab hurt.

Weird day all around. Chemo was canceled due to terrible bloodwork. Breathing still kind of bad so a CT with contrast when we return to rule out pneumonia.

Liver numbers up again. Been threatened with Satan’s tic tacs as that is the only one that will drive the liver numbers down. I have to get more bloodwork next week while we’re away.

Great news on the MRI. Not so much on the other. Oh and getting a revision done on the port since it hasn’t worked since day 1 without the super expensive TPA to open it.

I made a short update post on Bluesky, photo 1. My friend asked if they could rework it into a poem, photo2.
She did great! Mary Samios

I erroneously thought that the break from chemo would lessen the body pain. Oops, how wrong I was. I may make it to the beach at some point before we leave, I hope so. For now I can sit on the deck for short periods of time and it is glorious. Happy to be here, Sadie is happy to be here, and the hubster has gone across the street to fish. This is pretty much how it usually is with the one notable exception of course. LOL.
Here’s a photo for fun, tell me if you think he’s going to catch any fish today or will he lose his sinkers.

Windchime created by Amber Roth of Art by Amber Roth. Bones, shells, and sea glass! It is beautiful and I love it!

And from Branden Kadunce… My wee carved and painted guy complete with jumbo coffee cup and stabbity things!!

And finally, the wonderful silly winter hat, also from Amber Roth. I haven’t named it yet.