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August 8, Facebook post

August 8 ·

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Phoebe opted to stay down here with me tonight. It is rare for me to remain on the couch all night, but I have steroid brain so I am wide awake and full of words. Also still full of pain, but expecting tomorrow to be better. It’s almost time for my Brownie Bite. I also used CBD salve all over. Hoping the PPI they gave me to counteract stomach issues from the high doses of Prednisone that start tomorrow will also allow me to take Tylenol arthritis. It is an interesting ride y’all. Love all around. Look at that adorable cat.

August 11, Facebook post

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Short update: had CT for abdomen and pelvis. It was to make sure the Keytruda wasn’t adding too much damage in return for (expected) tumor shrinking. It’s not. And CT was clear for any metastases from heart to pelvic bowl, so same as it was end of May.

Bloodwork was improved, but steroids will continue until it’s near normal. Lung CT is near end of August to see how well the treatment is working.

Love all around!

August 20, Facebook post

I could not take staring at the same four walls of my house any longer. As we had to cancel our beach trip I found us a cabin in the woods of the Laurel Highlands. It is quite rustic with no Wi-Fi at all, no internet, have mobile data sporadically. I’ll check in when I can, but won’t be posting much. I didn’t want folks to wonder why I’d gone so silent.

🌳 and ♒ and resting my 🫁
Blessings all around! ❤️

August 28, Facebook post

I have fantastic news!

My tumor is shrinking. No official measurements from radiology yet, but my doc (Dr. Malhotra) says it looks smaller and I saw it, too, on the imaging!!

My liver enzymes are back within normal range from the Keytruda damage. It was a hard slot of time recovering from that assault on my immune system, but the most recent studies show folks who have Keytruda side effects means it did what was intended and helped shrink the cancer! Now I get to do stepdown faster with the Prednisone. 🎉🎉🎉🎉

Much love to you all!