On this one all comments will be deleted. I do not have extra energy for comments
Healing energies always welcome, not required.
Update:
3rd day of high steroids post spot radiation therapy. Kevin is my med guy because I was certain I was only 2 days high dose. Nope. shakes fist at sky
Residual symptoms seem slightly less today. Haven’t thrown up, good bonus. 😊 💞
Photo tax:
Traveling healing basket.
comments might be deleted, it’s not you, it’s me**
I had 3 days in a row of pinpoint radiation to eradicate the brain mets and any residual from the excised one. It is expected to be good for at least a year, maybe longer, and scans periodically.
Learned I’m now allergic to Ativan. Thanks MCAS. The Ativan hangover combined with the allergic skin response was its own little hell for day one into two. 🎉 🤨 🎉
The monster mask was necessary. You are locked in. It sucks, but it is less than an hour. My max was 45 minutes. My min was 30.
The part over your chest isn’t locked and your lungs are free.
Behold the monster!!!!
Comments will be deleted
First standing shower since surgery, gooood scrub around the incision, permission for upsweep granted…feeling clean.
2nd, maybe last post for today.
I’m also medically cancer staging wise
Stage 4, Terminal
Per the smart docs at Hillman Cancer Center.
Still have the best teams.
Had follow up with Nuero-oncology brain surgeon guy. Spoiler: he’s thrilled.
Here is my daughter’s summation of a day that lasted thru 6 hours of appts, preps, scans, talking, NO DECENT FOOD, and finally an MRI for pinpoint radiation mapping:
“Neurosurgeon said most of recovery for mobility from surgery will be seen within 6 months and wherever she’s at at the one year mark is about where things will stay. I like him a lot. Very straight forward and didn’t even flinch about a year from now. That leads me to believe he has just as much confidence about this as he did the surgery 🙌❤️💛🧡🙌🌟🌟🌟🙌”
Friends. Conversations coming.4 right now keep reminding yourself that I am one of your deathworker friends, and I knew when I agreed to this particular body in this particular time for this particular human body contract that***once I took a first breath the rest of my contract said there would be a last breath***I have known that I am terminal since my first breath. I have known that I am stage 4, terminal, since my first breath.This is important information to try to keep in mind as we navigate this space together if only so you understand the point of view that I am coming from. I will try to gently educate you because I love you.I do not need you to carry any certain belief to stay in this space.
Posting to my wall will remain off until I get my bearings.
Not dead yet.
Not expecting to be dead soon.
And…
Went to hospital for suspected stroke (I knew it wasn’t). Long story, details later. Brain lesion metastases from primary lung tumor. I named this one Blessed little fucker because it took out my dominant (left) arm and hand bite by bite over 2 weeks. I ran stroke protocol 34567812 times. Believed I’d pinched a nerve. BLF (Blessed Little Fucker) was resected, all function returned. Minor tweaks thru OT to come. General strength PT for a bit.
Turns out some things I tossed off as aging were tumour gags. LOL 🤷🏼♀️
Radiation first, chemo starts on June 26. I’ll have a port. Yada Yada.
Stage 4, terminal but managable, optimism all around.
Do not smoke. Hahaha
Details when I have them. Healing prayers and energy welcome. I’m going day by day with my focus on clearing and joy. We have Hillman Cancer Center and one of the best global teams for cancer, cutting edge tech, research, etc.
Undiffererntiated adenocarcinoma unless new testing shifts it. Not the worst, not the best, many tools.
It is not small cell or squamous cell (worst prognosis), not the best one, either, that’s non small cell basal something and has most tools. 💜
FB wall off while I narrow my focus to health and joy as the treatments do their jobs.
All styles of healing energies welcome regardless of base spirit. Candles, saints, jujus, prayers, etc welcome. I’ll update periodically. I probably won’t answer comments. I will NOT entertain advice, well meaning or otherwise, on my profile. I will not be answering most individual messages.
LEAN IN TO JOY with BONEWEAVER 