***Comments are fine***
Short update: had CT for abdomen and pelvis. It was to make sure the Keytruda wasn’t adding too much damage in return for (expected) tumor shrinking. It’s not. And CT was clear for any metastases from heart to pelvic bowl, so same as it was end of May.
Bloodwork was improved, but steroids will continue until it’s near normal. Lung CT is near end of August to see how well the treatment is working.
Checked in and waiting (8am) at the 3rd “surprise” appt out of 4. IV infusion of antibiotics to counteract possible opportunistic infections from prednisone I’m taking for Keytruda side effects. 
LOL
OlderBoy is making me “Magic Mineral Broth” from a recipe the Daughter came across. It has Japanese yams (unsparkly geode is what I thought) and other delightful veggies and such.
ETA: it is delicious! ❤️
I could not take staring at the same four walls of my house any longer. As we had to cancel our beach trip I found us a cabin in the woods of the Laurel Highlands. It is quite rustic with no Wi-Fi at all, no internet, have mobile data sporadically. I’ll check in when I can, but won’t be posting much. I didn’t want folks to wonder why I’d gone so silent.
🌳 and ♒ and resting my 🫁
Blessings all around! ❤️
Where we are staying. Beautiful. Creek in back yard. Can hear it from front screened in porch. Will try for video . Hoping to get the photos up while network is active.
Ventured out into the semi wild world with Dave. Felt like a regular person! Tried pro mode on phone canera, had no idea what I was doing. Here are your amateur barely beyond raw data photos.
Somerset County and Forbes State Park entrance.
Chose a healthy side salad in lieu of those delicious cookies in reach. Hahaha
(mixed greens on the bottom, pieces of cantaloupe, blueberries, tomato, almonds, sprinkling of Parmesan, gluten-free croutons, and a drizzle of balsamic vinaigrette)
I have fantastic news!
My tumor is shrinking. No official measurements from radiology yet, but my doc (Dr. Malhotra) says it looks smaller and I saw it, too, on the imaging!!
My liver enzymes are back within normal range from the Keytruda damage. It was a hard slot of time recovering from that assault on my immune system, but the most recent studies show folks who have Keytruda side effects means it did what was intended and helped shrink the cancer! Now I get to do stepdown faster with the Prednisone. 🎉🎉🎉🎉
Much love to you all!
Reclined on the covered balcony 15 floors up with my healing scarf and polarized sunglasses. ~bliss~
Comments will be deleted, no energy to answer
Yesterday was 1st round of curated for my genetic makeup and this particular type of undiffererntiated adenocarcinoma more commonly known as smoker’s cancer. It was far shorter time in the infusion chair. Both Samantha and I were moved off center by the rapidly changing meds and potential side effects we’d mentally prepped for. All changes were great changes and a bit disconcerting all the same.
New meds were shifting up until they entered the infusion port. It was wild. Good, but wild.
I wish I could talk sense about it, but that will be. I’ve been trusting Hillman Teams, built on cutting each research and results who’ve all kept their humanity and turns it towards you.
The port was a success. Some MCAS itching from adhesives because I believe MCAS wants to be a continual reminder that if not the med for it that has cleared up other things who knows when my brain would have found a way to get me to listen. I do not know how far into the future for other humans, but one my messages from the Ether has been that whatever they decide to name this style of mast cell fuckery that’s quickly responded to by cromolyn sodium, it is one of built-in DNA markers that can slow, stop, clear, and warn of certain types of cancer.
Life is weird y’all in the best of ways.
I don’t Google this type of cancer. I’m not anyone’s stat while I’m alive. Dr. Rhee and my lead doc Dr. Malhotra are fantastic.
I’m grateful to the lifetime of spiritual practices that taught me how to untie the hands of the Universe with my small expectations, and so much more that I’ll be happy to talk about later.
Fatigue from the pinpoint radiation is settling in. Many meds to allow this process to do its thing. Sleep hard, wake hard, eat 34000 small meals a day. That number is an exaggeration, but feels accurate.
Falling back to sleep. Take heart, friends, we’ll talk real talk soonish.
All is well, all is well, and all manner of things shall be well. ~Julian of Norwich
Again, all healing energies welcome, none are required. 🥰 💞
LEAN IN TO JOY with BONEWEAVER 