Health Update: Rough ride recently. The MCAS reaction to my port has only increased. I called the dept. that does the insertion of them and told them the brand and style that most likely will cause fewer issues. The reason I think that is because a local person who also has MCAS has gone through a bunch of ports, most caused issues. This particular brand has been the least triggering to MCAS. I also got a closer time slot for the replacement, moved up 5 days to the 15th.

I was supposed to have a CT with contrast today, but the contrast portion was eliminated. I’m guessing it was because I just had my chemo treatment yesterday. Had already had the ivy needle inserted of course, but that is just how this week has been going. I have a flush all through my chest, up my neck, and up to my hairline. It is very uncomfortable. Everything aches. I really cannot wait until this port is replaced and a bunch of this stuff settles back down. I do not know how long it will take for that to happen but I expect some relief within a couple of days.

I’ve dumping cromolyn on my port and taking extra doses. It helps some.

On the good news: all my bloodwork including liver numbers have improved. 🎉🎉🎉

Death update: still terminal. 🤷🏼‍♀️
Working on moving my updates to my blog so folks not on Facebook can read and I don’t have to post everywhere. I’ll post here and there.