Update (comments and questions are okay):
As my med list shortens I now take all the pill form meds once a day except 1 dissolving tab later in the morning, 1 brownie bite middle of the night. Still taking the cromolyn (they doubled the dose when I was in Nuero ICU). Still a ot more than I used to and less than it was.
When I was released from the anti-seizure med prescribed after the tumour removal I was also released from a 24/7 babysitter plus I can drive, In theory, driving will wait.
I have a lot more energy than a week ago. PT Rob even commented on it. I can shower by myself (with the shower chair because not yet running around). I made dinner for us 1st time in months.
Dinner was gluten free spaghetti with a cheese white sauce and meatballs. First time making a roux with tapioca flour. It takes awhile to thicken, but once it starts, hoo baby, it never stops. I even used whole milk instead of half-n-half, Irish sharp cheddar was a qood choice. Also a good choice would be a box grater at this house. Green herbs to season with salt and pepper.
I didn’t salt the gluten free pasta water and that was a mistake. Salt needed to added at serving.
Meatballs were not too lean ground beef so I’d have fat for the roux. A gooc amount of paprika and salt plus pepper GF ripped up bread (next time will toast and grind to smaller bits) and an egg tc bind it.
I used a counter height stool for the Iong parts.
It was delicious. 💜